Healthcare data has traditionally been collected and stored by medical professionals. Decisions concerning a person’s health are made based on this data. In the digital age, health data are stored in various healthcare institutions’ databases. In Estonia, for example, the electronic medical records of hospitals or family doctors or the Estonian Health Information System. At the same time, these so-called health information systems mainly contain disease data, which, with a few exceptions, have been collected when a person has complaints or health conditions.

Our research group aims to find suitable data sets and tools for person-generated health data and to explore how to share this data with healthcare professionals. This would allow for an overview of a person’s health status when they are not sick , or their chronic condition is under control and to find data patterns that would help identify potential risks and prevent the development of diseases.

In the first half of the seminar, we will explore the existing digital environment for capturing and exchanging health data and information, and in the second half, we will add to them the part of the data generated and collected by the person himself and the research of this domain.